We're still here: The implications of aging with a disability

dc.contributor.author Low, Jennifer
dc.contributor.department Theses & dissertations (Interdisciplinary)
dc.contributor.majorProfessor Jennifer Margrett
dc.date 2019-09-22T21:32:18.000
dc.date.accessioned 2020-06-30T01:36:16Z
dc.date.available 2020-06-30T01:36:16Z
dc.date.copyright Mon Jan 01 00:00:00 UTC 2018
dc.date.issued 2018-01-01
dc.description.abstract <p>Those who call themselves part of the disability community and those who advocate for them have seen many changes in the last forty years. Persons with intellectual disabilities are living longer, thus the need for caregiving by family or agencies. The author addresses the need for person-centered planning, which is a critical issue. Specifically, the author focuses on the following: (a) the definition of person-centered planning, (b) service agency use of this approach, (c) potential detriments if this approach is not used, and (d) the benefits of implementing a person-centered planning approach with persons who have a disability. An agency scan was conducted to examine services provided to persons with intellectual disabilities as they impact service use and planning for the future. Specifically, the author examined services available to assist individuals with disabilities to be independent individuals, as well as services that can help parents plan for the future. The author spoke with area agencies about the services they provide. What services are available? How do they implement these services? Is person-centered planning being used in their agency? Following review of agency services, the author describes two interviews with guardians of persons with intellectual disabilities. The goal was to interview area parents or guardians in order to identify areas of greatest need from their perspective. Are local services adequate for them? Do guardians know about all of the services available to them? Are there areas where services could be better? Are there services that are needed that are not present? There is still work left to do in the area of person-centered planning and agency services. A way needs to be found to support agencies through community fundraisers and volunteering. Parents and guardians need to work hand-in-hand to make sure the individual with an intellectual disability is getting the services they need. Parents and guardians need to speak up to make sure individuals are being listened to, that their wishes are being honored on a daily basis.</p>
dc.format.mimetype application/pdf
dc.identifier archive/lib.dr.iastate.edu/creativecomponents/83/
dc.identifier.articleid 1117
dc.identifier.contextkey 13390295
dc.identifier.s3bucket isulib-bepress-aws-west
dc.identifier.submissionpath creativecomponents/83
dc.identifier.uri https://dr.lib.iastate.edu/handle/20.500.12876/17175
dc.source.bitstream archive/lib.dr.iastate.edu/creativecomponents/83/JLow_creative_component_2018.docx|||Sat Jan 15 02:09:40 UTC 2022
dc.source.bitstream archive/lib.dr.iastate.edu/creativecomponents/83/auto_convert.pdf|||Sat Jan 15 02:09:41 UTC 2022
dc.subject.disciplines Disability Studies
dc.subject.disciplines Social and Behavioral Sciences
dc.subject.keywords aging
dc.subject.keywords intellectual disability
dc.subject.keywords caregiving
dc.subject.keywords person-centered planning
dc.title We're still here: The implications of aging with a disability
dc.type article
dc.type.genre creativecomponent
dspace.entity.type Publication
thesis.degree.discipline Interdisciplinary Graduate Studies
thesis.degree.level creativecomponent
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